What is Epidermolysis Bullosa (EB)?

Epidermolysis Bullosa (EB) is a rare genetic connective tissue disorder. There are many genetic and symptomatic variations of EB, but all share the prominent symptom of extremely fragile skin that blisters and tears from minor friction or trauma. EB is always painful, is often pervasive and debilitating. There is no treatment or cure. Daily wound care, pain management and protective …

About Mahour

Mahour Group is a voluntary, non-profit organization dedicated to providing support for people affected by EB and their immediate families. It all started with small parties with friends. When to calm our worries away from home and to get rid of nostalgia, in order to connect our children to customs and culture, we decided to organize traditional celebrations. The party …